greatbear: (static)
Well, at least I had a pretty decent run since around the time of our wedding til a couple days ago. Once again, my lower back decided to crumble from beneath me and I am again a hunched-over invalid in lots of pain, needing a cane to get around and no longer leaving the house. While it is not nearly as bad as my situation last year at about this time, it's similar to my original symptoms that eventually needed surgery to fix, and after that first surgery I was left permanently affected with nerve troubles. At least I can sleep mostly normally this time, unlike last year where laying down was impossible in any form. I am hoping this is a temporary setback that won't require trips to the doctors or worse. This all flared up late last week while I was doing the last bit of electrical work on the house. I was installing an electrical outlet in the entryway in order to plug in an illuminated console cabinet, a task I've been wanting to get to for over twenty years (I definitely put the "pro" in procrastination). This involved walking back and forth from one room to another, squatting or sitting on the floor, making holes in walls and fishing cable, among other involved tasks. Perhaps it wouldn't have been so bad if I had noticed before that the wiring in the wall was 12gauge instead of the 14guage I had assumed, and needed to start over. Halfway through the work and with live wires sticking out from the wall and many of the remaining outlets in the living room dead, I couldn't stop, so I finished everything and cleaned up despite the increasing, excruciating pain. If there's a bright spot in any of this, I had gotten most of my numerous current projects and tasks completed, save for taping/spackling/sanding the reconfigured wall between the entryway and living room, and the paint and trim work. Jeff's excitement of me also finally finishing the skylight project I began 4 years ago will be dashed once again. As usual, I feel like I let him down, which I feel is often the case. I just can't catch a break anymore.

We were set to go watch Penn State play Maryland up in PA, but I sent him up along with Snickles, with Kodi and I staying behind to rest. Snickles likes to take the long walks at least twice a day in order to do his doggie business, and those walks were a big part of my exercise routine, many times 5 miles or more. Those are definitely out, and while I can simply let Kodi out of the house by himself to do his thing, Snickles needs to be leashed and walked lest he take off to points unknown, his only issue remaining since we've had him in training. We have also some shows/concerts in the works, and I'm afraid I will lose out on those too. If there is a silver lining in the cloud this weekend, there was more family drama that erupted during my absence, and this is one thing I want no parts of. I am no longer technically an outsider and will hold not one damn thing when it comes to the intra-family drama, feuding and attitude problems. Seriously, there are Jerry Springer levels of lying, thieving, homophobia, bigotry, closet cases, mental illness, addiction and more in the extended family, and both of us are glad to be far enough from it not to deal with it on a daily basis. Still, it creeps in over the phone, emails and text messages, and it makes stress levels go up. If it weren't for his mom and dad, we both would remove ourselves from any further contact. It's nearly always some stupid issue whenever the siblings call. This is why I 1) am so glad I am an only child with no other family and 2) I refuse to be dragged into this nonsense. I have no problem telling them where to go, nor with the amount of broken noses I might leave in my wake.

As my dear readers can probably imagine, I am going stir crazy already, I hate laying about doing nothing. I was like a smiling pig in a big puddle of slop doing all these projects and more, and setting up ideas and supplies for the next thing on the evolving list. Lots of momentum was brought to a complete halt now, and while I might not be literally climbing the walls, I am bracing myself against them as I move about. I just gotta focus my energies on things that don't require much movement. The one thing I have managed to avoid so far in all of this is a return to taking the narcotic pain killers I had needed the last time. The side effects are something I just don't want to deal with unless the pain becomes totally unbearable, and I definitely don't want to go through the detox process again either.

Finally, I consider this the "third strike." Since I initially was beset with these back problems and the lingering damage and disability afterward, I could not bring myself to file for permanent disability. I figured I would be able to pull myself out of it all eventually and head back to the workforce until my official retirement date (or even after), but I am beginning to face the fact that that day does not appear to be coming anymore. This is the biggest hit to my pride that I can think of besides the disability itself, as I have always, always been proud of my independent nature, my ability to literally lift myself from poverty to living in what is currently the second-richest county in the US, and to be able to handle whatever might come my way. My ego didn't want to face this day, and it's looming larger than ever. I feel I am giving up. I have run out of options by all measures, and it kills me t think about it.

*sigh*

FML

Nov. 23rd, 2013 01:47 am
greatbear: (blackness)
I have been silent in these parts for the past few days since I got home from surgery, and, as I alluded to in the post prior to that one, extended silence means something went wrong. I gave it till the end of this week and I have stabilized, but not in a good way. The surgery did help alleviate the constant numbness and pain that kept me from getting sleep of any quality. Scarring from my previous procedure was removed along with a chunk of herniated disc that broke away and wedged tight against my spinal cord. This was thought to be the cause of all my symptoms including the stabbing sciatic nerve pain shooting down my left leg. After the procedure was done, I basically shook off the anesthesia, performed a self-test for the nurses and doc to make sure things more or less worked, and I was dumped into Jeff's truck for the ride home. I was still achy and stabby and numb, but a lot of that was leftover from the procedure itself.

Or so I thought.

After coming home I found I could not stand upright or use my cane, so I used my POS walker to get into the house, sit down and begin healing. I was back to needing the tool box stack on wheels to get around, but I figured once I got some recovery in, I'd be fine. Crawling into bed that night was a nice surprise, as I was able to finally stretch my legs out with no pain (or far, far less, not entirely pain free) and conk out for a few hours continuously. I discovered soon enough when I woke up that the sciatic nerve pain was indeed still present, and in fact, far worse. I fumed about it for a couple days as it didn't get better, and me being me and assessing situations like I do, I came to a conclusion that I shared with the doc when I called the other day. My "diagnosis" is I actually have two separate injury sites, and only one was actually tended to. By removing the constrictions around my spinal cord, I am freed from the pain the constant pressure was causing, and as a result, the original weakness and numbness was mitigated as well. In simpler terms, the "signal" coming from my lower half is now clearer and without the short circuit that was pinching it off. The problem is, I also have a sciatic nerve pinch closer to my left leg, most likely at the base of the spine well below where this current work was performed. With this new high definition signal path in place, the already excruciating at times stabbing pain has taken on Dolby Digital THX 9.2 channel 3D IMAX proportions. With no attenuator in the signal path, this shit really, really hurts, especially when, if I am in a relaxed position, things are fine. If I stand and let my lower spine begin to take my full upper body weight, instant and excruciating pain. I can actually feel the vertebra stacking against one another right before the pain hits. I asked the doc for a methylpred dose pack once more in an effort to at least knock back the intensity of the pain. It's a long shot, but I'll try anything at the moment. I took the initial round today, if there are any improvements to be had, they will begin to appear in the next few days.

I guess I don't have to say I am one very miserable cuss right now, unable to do much more than lay in bed or sit for short periods in a chair diddlefarting online. Certain motions get me howling in pain, I can't leave the house nor go downstairs or anywhere else the walker or the toolbox stack won't go. I've stumbled and fallen a few times already and the act of catching myself feels as though I'm being attacked with a hatchet to the back, my resulting screams sending the poor dogs under tables and beds or scurrying into far rooms or downstairs. Being totally unable to do anything that normally takes my mind off of things makes me feel like I am in the worst kind of prison. The drugs, pain and inactivity also play hell with my gastrointestinal tract, adding a very directed insult to the injuries I am already beset with. The suffering pooches suffer that much more, as I am completely unable to take them outside much less for a walk, leaving Snickles to whimper knowing he'll only end up crapping in the house. I can let Kodi out on his own, he will do his business and return. Snickles needs to be on a leash, and he likes to do his business far from the house after walking. Jeff does this right after coming home from work, and Snickles, to his credit, seems to be holding it in better than I expected. Both dog's know something is up with me. They are both very appreciative of my return to somewhat normal sleeping, they will stay with me in bed from when Jeff leaves in the morning (between 4-5am) until I might finally get out of bed for good much later, like today at almost noon.

Poor Jeff has tasked himself with taking care of me and, honestly, I truly would be lost without him. He took a bit of time off to take me to and from the surgery and stay with me the following day to make sure I was okay. Work has been very, very busy for him and dealing with me is only a further burden. We were originally going to head to PA this weekend in order to visit his dad, plus mom in the nursing home plus some other things as well as get away from it all. I can't go, obviously, but I insisted he head up tomorrow to see his mom before the holiday, spend needed time with his dad. Dad misses both of us even more these days since mom is no longer at the house. Jeff needs a break away from me more than ever, and I hope the weekend gives him that. He will take Da Snick with him and leave me with the less-of-a-handful Kodi. I will wake up tomorrow (hopefully!) and try to make do with the hand I've been dealt for now.

So what do I think is in my future? I will have to get a new MRI spanning a far more expansive view of my lower back and hip region. The docs will find an impingement site and, due to the scoliosis and advanced disc degeneration, want to fuse a couple if not more of my vertebrae together as a more permanent fix. Anyone who has kept up with my problem here will remember I hurt myself not once, but twice before I was completely incapacitated. The first time probably herniated the disc, causing me the numbness, the second time most likely collapsed my lower spine, making the sciatic nerve pain the worst I ever had. The surgery will be far more invasive, the recovery time quite long, and, most likely, I will be considered permanently disabled at that point. When I had asked my doc for signed paperwork for a handicapped parking placard like I had before, this time he made it out for a permanent (blue) one, rather than the usual red ones I had while I recovered. He knows what I do already, and probably a bit more. I will have to make permanent changes in my life to accommodate this ongoing ordeal, and hope that I can restore at least some of my mobility without pain. Once I know a bit more where I'm headed here, I will file paperwork to apply for disability assistance. I hope to hell I can shake it off and do something real for a living, as it stand now, if I can't do the usual stuff just around here that makes me happy, as varied as it is, there's not much incentive for me to love life anymore. It will just be existing.
greatbear: (picard upset)
Actually, it has been a bit over a month now since I wrecked my back, and my life has been as miserable as you'd expect. Honestly, this has been the worst "suffering" I've had to deal with regarding a health problem. The levels of pain have been on par with the bout with severe diverticulitis that became a serious case of peritonitis which came close to killing me. That ordeal only had me in extreme pain for about a week. Even when I was in a car accident that busted up my shoulder and left me with a permanently detached collarbone was easier to deal with. I've spent the entire time unable to sleep in a bed, I sleep sitting in a chair with a small table (or, more often, my keyboard drawer, thankfully I had made it "industrial strength") with my face buried in a pillow or sofa cushion. I wake up from increasing pain as the drugs wear off. If I have the misfortune of putting myself in a bad position while asleep, the pain makes me groan and cuss. I tried a couple times to lay in bed after I had an epidural injection into my spine thinking it might be doable. I woke up in such searing pain I nearly blacked out. I could almost put all that aside if it weren't for the fact that I am basically unable to do anything to take my mind off of it all. I need a walker to move about the house, and two canes the few times I went out with Jeff to the various doctors. The walker is to wide and cumbersome to easily move around the house, so instead I am using a dolly that has five stacked and connected power tool cases. It's narrower, and I can use it to cart things around, and the weight of everything (maybe 80 pounds) gives me a bit of resistance that helps my legs. I guess it fits my character a bit better too. If I stand, I make Quasimodo look like a model of good posture, gait and stance. Walking without any support is impossible.

Those who know me well are quite aware of my apparent need to constantly build, fix, examine, design and tinker with things. The fact this injury has all but stripped me of the ability to do these things is tantamount to cruelty and torture. Yes, there are chores and tasks needing attention, but I am unable to do a lot of the cool and fun projects and such I had in the works. With little more than the computer to keep me entertained, I peruse my various forums when I am lucid, and I spent far too much time dreaming up new ideas as well as collecting thoughts on current stuff. I also discovered that popping over a dozen pills a day including narcotic pain relievers fogs my judgement as evidenced by the purchase of yet another high-zoot home theater receiver to redo the big setup in the living room. I can at least take some comfort (and distraction) as I integrate this new unit and be able to watch movies in style once again. that is, until the required drugs kick in and I fall into a near narcoleptic sleep wherever I might be.

I have a doctor visit tomorrow to discuss the next course of action, which will involve more surgery on my spine. I suffer now from degenerative disc disease, and moderate to severe scoliosis. The real problem at the moment is due to a herniated disc once again compressing the spinal nerves, along with a "free fragment" of that disc separating and digging hard into the nerves. This is worse than the original problem I had with the spinal stenosis which slowly over time constricted the nerves and left me with pretty severe sciatic nerve pain. At least back then I could get relief laying down, or, oddly, sitting cross-legged on the ground. This time it's just sheer hell with no relief in sight for who knows how long. To add more insult to injuries, this doesn't take into account my Jenga'd vertebrae which will will undoubtedly be a source of future problems, which most likely will involve metal plates and screws and bone fusion. Right now, I am fortunate to have Jeff to help me with daily life and trips to the hospital and doctors. I am just so sorry I get him awake in the middle of the night so often when I end up screaming from the pain.

I have a lot on my mind considering the future. This might end up being a permanent disability, one that will require lots of rethinking and changes. I'm trying not to let that absorb me too much, it's too depressing. In the meantime, I am trying to stay as positive as I can. Wish me luck.

Edit: I want to thank everyone who has left me well wishes and good thoughts. Sorry I haven't gotten back to thank everyone personally, writing my thoughts out online has been an exercise in futility and lots of misspellings and goofy grammar. Drugs are bad, mmkay...

Back

Oct. 2nd, 2012 02:52 pm
greatbear: (Default)
I think it's only fair, given my post out of the blue from last night, that I should follow on with some news and other blather on what's been going on in the past months. Far from a comprehensive list, this is just going to highlight most of the major bits.

One of the things Jeff and I had been looking forward to more than anything this year was to have a longish vacation. We had talked many times about extending our stay in Provincetown beyond our usual week. It would always seem that we'd run out of time to do all the things we wanted to, as well as explore the greater part of Cape Cod. So, this year we did just that. However, and interesting thing occurred. We had two full weeks to play with, yet we did far less than we would on our week (or less) of time in the past. We got caught up on just relaxing, there were a couple days where we never left the campsite. We had the perfect shady spot, all of our canopies, tables and cooking gear set up, comfy chairs and tables, lots of music, and wonderfully mild weather when the majority of the USA was experiencing record setting heat along with some severe weather events. Despite not hitting the clubs and trekking all about, the relaxing was precisely what the two of us needed, especially Jeff. There is something to be said about just disconnecting from everything and, well, doing what feels good. By far, this was our most relaxing vacation yet.

If anything put a damper on our enjoyment it was the fact on the day of our arrival La Casa Mayhem and the surrounding vicinity got nailed HARD with a severe storm, knocking out power for over five days. In fact, as we were getting into Massachusetts I noticed a convoy of utility vehicles, bucket trucks and such heading the opposite direction. My comment to Jeff was that I figured the area had gotten hit with one of the myriad summer storms and now the trucks were heading back home. It wasn't until later that evening I read on the news that the Maryland area was hit badly and help was coming from many surrounding states to restore the record power outages. My attempts to connect with great computers filling the hallowed halls of Mayhem HQ failed as well, and I knew we were without power. Normally when I am home, it's just a simple task for me to connect the generator and fire it up, and life becomes normal. Unfortunately, this is not an automated process, and the power failure lasted over five days, taking with it two freezers full of expensive food, plus everything in the upstairs fridge/freezer as well. I had a local friend check on the house occasionally while we were gone. When the power was finally restored, the water system failed to come back up (I have a well) and this prevented the automatic watering of the veggie garden. So, I resigned myself to having lost not only the food inside, but some of the garden crop as well. It was searing heat and drought the entire time I was in PTown, and that took its toll on the garden. First thing I did when I got home was to figure out the problem with the water (a screen in the system got fouled with sediment that squeezed out of the empty storage tank, a simple fix, rather than the well running dry or the pump failing) while Jeff assessed the now re-frozen messes in the freezers. Later on we'd document the losses and toss out a portion of the mess each week on trash day, and the now empty freezers got totally dismantled inside for a much needed good cleaning. What we now have stored is streamlined and all inside of one freezer. There was way too much old stuff lost in the deep confines of the freezers, so not everything was a true loss. Most of the meats, however, were a different matter.

Work for me had become quite a bit better, with the folks there realizing they had the only one left from a large loss of retirees which jumped ship for retirement or early buyouts who know the most about the breadth of equipment and processes, so once they found out I had been saving their bacon upon my return from disability, I finally got some of the respect I deserve. It had actually become somewhat enjoyable for once.

I had been riding a slow wave of recovery from my back issues since the beginning of the year, but Jeff was increasingly plagued with health problems caused by his thyroid and the large goiter that had attached itself there like a face-hugging alien. Between that and some time constraints we decided to cancel the usual long weekend camping trips to Hillside that we had been doing continuously for a dozen years. This allowed me to have a chance at catching up on projects around the house and garage. I tore apart the Stratus that got whacked on the front corner due to an idiot in one of the traffic circles (one in over a dozen in approximately 2 square miles of area, this has to be some sort of record!) here at home. I put off this project until after PTown since I had other vehicles to tool around in. All the while Jeff kept being delayed over and over again by the staff at Johns Hopkins hospital increasing his frustration during a time where his workplace was becoming a living hell. I don't see how such a world-class medical facility can have such a totally inept and unprofessional support staff. The doctors are awesome. Their office staff, however, is the pits.

At work I had succumbed to a minor back injury while moving a heavy (and very expensive) piece of electronic gear using the aging, rickety carts provided for such purposes. The cart tipped rather than rolled, and I caught the 80 pound signal generator from hitting the floor. I strained my back and was out for a couple days while the worse of the pain subsided. A few weeks later the same thing happened, this time with a different lab cart and a similar piece of heavy equipment. No sudden back pain that time, but I hadn't become pain-free since the first accident. I had issues with an achy and increasingly bothersome back for a while, then I had awoke one night in the same intense, searing pain shooting down one leg that I had dealt with before the surgery in 2010. I took my cane out of mothballs and started seeking serious medical help. It was then when I found out the new medical insurance company I had to get through work was something I wasn't qualified for. I spent my own coin on the first couple visits, but I needed some expensive tests which I had to delay for about three weeks while the benefits department switched me over to a different company. Last week I was finally shoved like a torpedo into the tube of the MRI scanner. Rather than getting a huge envelope full of films this time, I got a CD with all the scans as well as the same utility the doctor uses to move through the various layers and scan depths. I made my own diagnosis just for kicks, and a little while ago the doctor's office called and confirmed what I had seen, which was a new protrusion of the L4-5 disk onto the spinal cord, against some swelling of scar tissue left over from the laminectomy and apparently made worse by recent injuries. For the past month I have been once again off of work, in sometimes ridiculous pain and unable to do a lot of things I like and/or need to do.

Frustration is the keyword of the moment I guess, but it has not been without a side benefit. I was able to be home with Jeff as well as taking him to and from his surgery and doctors visits. His surgery was a success, and he's been recovering nicely. As our odd luck would have it, during the time Jeff has been off for recovery, his mother took a nasty spill at home and broke her hip. Unfortunately, she's been succumbing to Alzheimer's for a while now, and since her surgery has been placed in a nursing home. Jeff's (and my) time off has afforded him (and me a couple times) a chance to visit as well as help out his dad. Mom has recovered from her surgery fairly well, but her return home has been stymied by her fear of getting up to walk, which is a condition of her release. She's afraid she will fall again, and refuses to walk many times. If she's distracted by some other thought, she does just fine, but when it's in her focus, it's a no-go. So sad, since she wants to go home to familiar surroundings. I'm hoping in these next couple weeks she does what she needs and can go back home. Unfortunately, she needs increasingly intensive care, something dad can't provide, and is reaching the limits of what in-home care is providing. Seeing her in bed when we last left the home was heart-wrenching for me, I can't help but flashing back to those days when my own Mom was declining. I wish I could do more, but I am frustratingly unable to do so, once again. Life is a wondrous thing, but it can be fraught with sadness and pain too.

Big change for Jeff today. He had been working at a government facility that relocated to Fort Meade from Virginia. I warned him to expect a bit of self-entitlement out of the clientele that is so (unfortunately stereotypical) of that area. Well, it was more than just a bit. Jeff had to contend with some of the most selfish and downright hostile people he ever had to deal with especially in a (very) professional environment. Couple this with a racist and homophobic client he finally had enough. Prior to, and while he was out recovering, he made a lateral move within his company to a healthcare facility outside of DC. Today is his first day at the new place, and he has high hopes for it. I sure hope this will be a good one, since Jeff worked most of his life in healthcare, he feels the most at home there. Wish him well. I head off for my doctor appointment in a few minutes, and I already know there could be some new surgery involved. I hope I can put it off for a while so I can get back to work, catch up there as well as here, and plan on a specific time for any needed cutting so I have a feeling of control and pace, rather than uncertain waiting and lack of income. Wish me well too, while you're at it.

Profile

greatbear: (Default)
Phil

December 2016

S M T W T F S
    123
45678910
11121314151617
18192021222324
25262728293031

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jan. 27th, 2026 02:25 am
Powered by Dreamwidth Studios